Below:
• Foundations and associations
If your child or someone close to you is diagnosed with a growth disorder, you'll want to get informed -- and connected. Below you'll find a list of some organizations that can help you do just that. Foundations and associations Five families who all found themselves coping with growth disorder issues founded the Human Growth Foundation in 1965. Today the organization has over 1000 members and 30 chapters nationwide. The organization provides information and support, as well as grants for research, and opportunities for connecting through its website's chatroom and kids' section. Toll free phone number: 800-451-6434 This organization is another excellent source of both information and support. The Magic Foundation was established in 1989, and now has 11,000 members, and provides information on 100 different types of growth disorders. The foundation offers educational materials, a newsletter, extensive support services, and an annual convention. Phone: 708-383-0808 or 1-800-3MAGIC3 This Texas-based nonprofit provides a variety of resources for girls with Turner Syndrome and their families. Families can find information on learning disabilities and diet, on the latest research and what to expect as your child approaches puberty. Perhaps most important, the organization has chapters around the country and even around the globe to allow girls with Turner Syndrome and their families to connect with others. Toll Free: 800-365-9944 The Prader-Willi Syndrome Association is based in Florida, and has a national network of chapters to provide support to individuals with Prader-Willi Syndrome and their families. The organization also provides information to health care professionals, and sponsors research on the condition. The Association's annual convention also provides opportunities for families to educate themselves and stay connected. Toll Free: 800-926-4797
First published December 17, 2003
Last updated October 31, 2007
Copyright © 2003 Consumer Health Interactive
| 
